Michael Hund, CEO of EB Research Partnership, Named Chief Influencer

The Communications Board names Michael Hund, CEO of EB Research Partnership, a Chief Influencer.

What does it take to transform a rare disease from an overlooked condition into a global movement for research, innovation, and hope? In this episode of Chief Influencer, Michael Hund shares how EB Research Partnership has pioneered a venture philanthropy model that is accelerating progress for people living with epidermolysis bullosa (EB)

Under his leadership, the organization has helped expand the clinical trial landscape from just a handful of studies to dozens of active programs, contributing to groundbreaking advances and new treatment options. He also reflects on the impact of the Netflix documentary Matter of Time, which brought unprecedented visibility to the rare disease community through the power of storytelling.

Drawing on lessons learned from his upbringing on a Kansas cattle ranch and his experience leading a mission-driven organization, Hund offers a compelling perspective on influence, leadership, and trust. He discusses why great leaders run toward difficult challenges, why community is more powerful than audience, and how vulnerability and transparency create lasting credibility. Through a combination of entrepreneurial thinking, authentic storytelling, and relentless focus on impact, Hund demonstrates how leaders can build movements that not only raise awareness, but also drive meaningful and measurable change.

Host: Anthony Shop
Guest: Michael Hund
Producer: The Communications Board
Sponsor: The George Washington University College of Professional Studies

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Transcript